My Little Roo-Bear
The little boy I watch is my little Roo-Bear. He reminds me of Roo from the Winnie the Pooh books. He has several health related problems. One being that he has some brain damage that causes him to have seizures. The are not like epileptic seizures, but he goes stiff, then shakes. The seizures usually last for about 15-20 minute sessions with 5 second breaks inbetween. The doctors say that he doesn't feel anything and that they don't hurt him.
He's been having them alot more frequently over the last few weeks. I've been giving the parents updates daily so they can inform the neurologist. I truly hope that there is something that they can do for him. He's such a sweet baby boy and we've grown quite attached to him. It's been really hard these past few weeks to watch him go through this.
He also doesn't have a soft spot on his head. The doctors don't seem terribly concerned about this because they feel like his brain really isn't growing and so no pressuire is being built up. Normally, they would have cut a new soft spot on the top of the head and had the baby wear a "gladiator" type of helmet for weeks to shape the head and allow for some bone growth.
Sometimes I catch myself crying while doing the dishes because I can't stand to see him like this; it just breaks my heart. He's so little and didn't ask for this life, you know? Sometimes after the seizure is over he'll look at me as if to say, "why is this happening?" I just hold him close and give him kisses on his head. Fortunately, my son isn't jealous of Roo. He loves him just as much as the hubby & I do, so all is good on that account. I really hope and pray that the doctors will find a solution for my little Roo-Bear, so he can have a normal healthy life.
He's been having them alot more frequently over the last few weeks. I've been giving the parents updates daily so they can inform the neurologist. I truly hope that there is something that they can do for him. He's such a sweet baby boy and we've grown quite attached to him. It's been really hard these past few weeks to watch him go through this.
He also doesn't have a soft spot on his head. The doctors don't seem terribly concerned about this because they feel like his brain really isn't growing and so no pressuire is being built up. Normally, they would have cut a new soft spot on the top of the head and had the baby wear a "gladiator" type of helmet for weeks to shape the head and allow for some bone growth.
Sometimes I catch myself crying while doing the dishes because I can't stand to see him like this; it just breaks my heart. He's so little and didn't ask for this life, you know? Sometimes after the seizure is over he'll look at me as if to say, "why is this happening?" I just hold him close and give him kisses on his head. Fortunately, my son isn't jealous of Roo. He loves him just as much as the hubby & I do, so all is good on that account. I really hope and pray that the doctors will find a solution for my little Roo-Bear, so he can have a normal healthy life.
posted by M at 8:47 AM
1 Comments:
Very unusual. She is switching hospitals and doctors and is consulting a lawyer. Her pediatrician seems to think that she's got a good case. I hope so, he's going to need medical attention for the rest of his life if they can't do anything for him.
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